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Friday, March 8, 2013

Visit from Nana and Grandpa

We are finally HOME!!!

We got to come home to Austin on Feb 8 after 2 1/2 months out of the hospital, but still in Houston. We are now able to do clinic visits in both Austin and Houston. We go back and forth every other week, but still visit clinic every week.

Cael's Nana and Grandpa (on Sarah's side) have been visiting for the past 3 weeks. Both they and Cael have been having a great time. Cael has really been showing off for them. We have been working on some sign language. He now knows hungry, thirsty, milk, more, all done, doggie and monkey. He also knows where his head is, his belly, his chin, and MY nose. :) He also now knows "boiler up". It is the sign that we did at Purdue University.

Since we have been home he has figured out how to pull himself up on absolutely EVERYTHING. He really likes to furniture cruise now. Just today he finally figured out how to crawl on his knees, and how to climb the stairs. All by himself. He just crawled over to the stairs and made his way up 5 of the steps.



Cael has made a lot of progress eating. He is no longer on formula, but takes whole milk. He is eating lots of new foods, including all kinds of fruits and veggies, cheerios (one of his favorites now), bread, pasta, and brisket. He is really liking to try a little bit of our dinner every night. It's nice to not have to always feed him, but let him feed himself a bit now.

Medically (I know that's really what you want to know about) he is doing very well. He has B and T cells, but they still don't know if they are functioning. He is still getting IVIG every 4 weeks. That doesn't look like it will be decreasing anytime soon. The doctor did tell us we should be able to start taking him outside in April or May, once the flu season has finished. We still won't be able to take him to the stores, but at least we will be able to take him on a walk occasionally.

I am finally back to work full time. It is a little hard to leave for so long every day when Cael is doing so many new things, but it is nice to be getting back to a routine.