Photography and a new room

Cael has been moved back to the room he first started in when we arrived at Texas Children's. It is a negative pressure room so when he restarts the ribavirin tomorrow, he will be in the correct room. Ribavirin is an inhaled medicine that he was on previously for the paraflu. They plan to have him on it again until the transplant, at which point, I think they will either switch to the IV form, or stop it.

A photographer came to take some pictures of Cael today. She is a friend of my boss's wife. Her name is Nicole, and she was great! If you are in the Houston area and want some pictures, please think of her. Her website is www.ncolephotography.com/. She was so great with Cael. We are hoping for some nice pictures of him before he goes through chemo and looses his hair and doesn't feel like smiling. He was a champ. He was napping when she arrived, and I accidentally woke him up while trying to just move a blanket. He was in a good mood the entire time, and didn't even fuss. He was very chill the entire time.

His chemotherapy will start on Wednesday. He will get the chemo for 10 days, with the transplant immediately following. I plan to soak up all the wonderful Cael time I can tomorrow and all the play time I can get. He is cord free right now, so we can do so much more. Once he starts the chemo, he will probably be tied up by an IV for several weeks. His IV will be used for the chemo, other medications, fluids, and maybe IV nutrition (TPN). Good thing it is finally working well now, as it will definitely get a work out for awhile.