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Tuesday, September 11, 2012

Another sick day

Today was another not so good day. Cael threw up after 3 of his 5 meals. By his last one, I was almost scared to feed him, thinking he would throw up, which he did. After the second time, I had decided to talk with the doctors about it. When they came in, they confirmed what I had suspected - he has C Diff again. They tested him 3 times since last week to see if it was gone. The first two were negative, but the last was positive again. I'm not sure if it ever went away, or if it just went down enough to show as a negative when they tested.

The doctor thinks that the c diff might be the cause of his nausea. They have started him on vancomycin, which he will be on for about 2 weeks. It is supposed to be enter than the flagyl that he already took for c diff last week. That is assuming he can keep it down, and not throw up. He is also taking Zantac to try and ease his stomach.

The nurses told us that this would be very common once he starts the chemotherapy. Another great side effect to that. I feel bad for Cael. Not only is he sick with all these viruses, but he has to deal with feeling nauseous, too. The only good thing is that he is so young, he won't remember all of this.

There is one piece of good news that we got today. They have finally picked a cord blood to use for the transplant. They did an antigen testing first, then switched to an allele testing, which is supposed to be much better results. They found 3 cords with 5 out of 6 allele matches, which is very good. Then they picked the best one.

So now we just have to get him a little better, and they will be ready for transplant. That is much easier said than done. He needs to be completely off the oxygen, and then they will do another CT and the lung capacity test. They really can't give me a good answer as far as how much better he needs to be before they will do the transplant. They just keep saying that he needs to have his virus loads as low as possible, but they want to do the transplant as soon as possible. So they have to weigh those two things against each other to come up with the time they will do the transplant. At this point, we still have no idea when that will be.

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