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Wednesday, September 5, 2012

Good news/bad news about the CT

Good news first. Cael is weaning off the oxygen again pretty well. He was at 0.25 liters for a few days, and now he is down to 0.125 liters. Today he didn't throw up like he did the past 2 days. They don't know for sure what was causing that, but they think it might have something to do with being back on the oxygen. I don't really understand that though. He didn't get sick when he was first put on the oxygen, and it's not like he was put on a high amount. Other good news is that the air bubbles that were showing up outside of his lungs are gone.

Now the not so good news. The CT scan shows that there is no change at all in the infection in his lungs. So now we wait for at least 2 more weeks to do another CT scan to see if he looks any different then. We were really hoping his lungs would look better. The doctors keep telling us that his lungs sound so much better than when he got here 3 weeks ago, and the CT scans lag in showing good progress, but I still was hoping they would look a little better. This is going to delay everything by at least 2 more weeks. I was thinking the transplant would happen some time in the next few weeks, but now it looks like it will be at least another month, or more, depending on the next CT scan.

They might try some other tests to see how his lungs are doing, including a lung capacity test. Since he cannot blow into one of those lung capacity things, I don't really know how they will check it. That test might give them a better idea of how his lungs are actually doing. The doctor said what looks like infection might actually be some scar tissue. That stil concerns me since I know there shouldn't be scar tissue in his lungs.

There are also some other medicines they might try to help reduce the parainfluenza. The doctors need to all talk together to figure out the best course of action from here.

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