I actually don't have a lot to say today, which is quite a change. Yesterday Cael got a dose of pamidronate to help with his calcium levels. It looks like it has helped. This morning his ionized calcium level was down to 1.28. 1.0 is normal, so he has a little way to go, but it is better than the 1.4 he was at yesterday morning. They will continue to monitor the level, and he will stay in the PCU until he is ready for the transplant process. The Allergy and Immunology doctors are going to talk with the transplant team about when they might be ready for him. A&I is hoping to send him back to the BMT unit for conditioning (chemo) on October 8, which would put the transplant about 2 weeks later. Hopefully transplant team is ready for him. We are really ready for him to get that.
Other good news is that he drank 4 times today and didn't throw up at all. We started with a mix of water and pedialite, then worked up to full pedialite. Yesterday he threw up the pedialite, so we went slow to work up to it. If he keeps down the pedialite tomorrow for a few drinks, we will work back up to formula. He was also in a better mood today. He was playful and smiling quite a bit more than the past few days.
Adam's grandma and grandpa Willis left this morning. I think they had a great time seeing Cael. It was unfortunate they had to see him on a few off days, but they still got to see some smiles. Grandpa Gene was so thrilled when Cael held out his arms for him to pick him up. And grandma Betty had fun tickling his knees and getting him to smile.
Adam's aunt Pam and uncle Joe also stopped by today. They were bouncing Cael all over the place. And, boy, did he enjoy that. He had so much more energy today. But then he kind of crashed while they were here. Several of his medications make him drowsy, so he was fighting sleep by the time they left.
It has been so nice to have people come visit us. I can't wait for Cael to be home again so we can have visitors at our house instead of at the hospital.
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