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Monday, September 3, 2012

Visit from Barbie

My sister, Barbie, arrived last night for a visit. She and I stayed at a hotel for the night. It was so nice to sleep in a real bed. Then this morning she came back to the hospital to spend some time with Cael. He wasn't too sure about her at first. He has been so good with all the nurses and doctors that come in, to didn't expect him to be unsure about her. However, he has also gotten so used to all these people with masks and gowns and gloves on. She wasn't wearing those thing, so he seemed a little unsure about her. He would look at me and smile, then look at her and lose it. Then look at Adam and smile, then look back to her and lose it. By the time she was leaving, they were buds, though. He was smiling at her and letting her hold him with no problems.

Barbie took us out for lunch. It was the first time we have both left Cael at the hospital. The nurse watched over him while we were gone. We weren't gone for too long, but it was nice to have a meal that wasn't fast food or hospital prepared. Then Barbie got to spend some more time with Cael. They read a book and played for a little while. Before Barbie had to leave, she even took me to get a pedicure. I felt so spoiled the past 24 hours. I got to see my sister, sleep in a bed, go out for lunch, and get a pedicure! It was a very nice and much needed break from all the hospital stuff.

It seems like Cael wanted to punish us for both leaving him at lunch. So while we were gone, he took a nap. But while he was napping, his oxygen level dropped down to 85%. Usually he is at about 93 while sleeping. The doctor said she didn't want him to be below 92%, so he is now back on the oxygen. He is at less than 0.25 liters, so it isn't much.

He also is having some problems with eating today. We have been having more and more problems with him not wanting to eat, but today seemed particularly bad. We are going to talk to the dietician tomorrow about whether he should try a different type of formula, or if maybe it is just that he was having troubles eating because of his breathing troubles. I just want to make sure he is eating enough and gaining weight appropriately.

Tomorrow, Adam's brother and sister should be here to visit us for a bit, then take our dogs back to Indiana, until we are able to be home again. Hopefully I will be able to be here so he can get some time away with his siblings like I did today with my sister.

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