Crazy day part 2

The last post was interrupted by the doctor coming in to tell us that Cael was being transferred to the PICU. His calcium levels went up, even after having the diuretic. So now he is in the PICU, and they gave him a calcitonin shot, which is supposed to help lower his calcium level. He will be down here until the calcium level is under control.

The main concern with the calcium was the rate at which it was increasing. It should be between 8 and 10.7. His was at 13.6 this morning, then 13.8 this afternoon, and 13.85 after getting the diuretic. I'm not sure how long it has been high, but it sounds like it jumped in just the past few days.

He has been throwing up again today ans the past 2 days. Today was quite a few times. Luckily, he had a good nurse today who came as soon as she heard his cry. He has a very distinct cry when he throws up, and she heard it from about 4 rooms down the hall.

He also has high heart rate and blood pressure. They did another EKG today and found that his rhythms were a little strange. So to follow that up, they did a chest x-ray. It looks like the sac around his heart is inflamed. It is called para carditis. It can be caused by stress. They said they see it in older healthy kids too, but more often in kids in the hospital. Tomorrow he will get an echo to make sure there isn't any fluid in the sac. He will also get another EKG.

They also did an ultrasound on his kidney and stomach to see if there were any kidney stones or anything wrong. They didn't see anything worth noting, so I guess that's good.

Right now, they are working to get his calcium under control. I'm really hoping it happens very soon. There is nowhere in his room in the PICU to sleep. There are just 2 chairs to sit in. There is a waiting room with reclining chairs, but really, we both just want to be right by Cael. I know everyone will say we need to get our rest and go to the waiting room, but right now, we just don't want to do that. Maybe in a day or so we will feel different.

We also have no idea what we are going to do with all the stuff we have accumulated in his room. We have a lot of big toys, playmats, and food that we have nowhere to put here in the PICU room.