Well, it looks like we might not be leaving tomorrow after all. Cael started taking the cyclosporin by mouth on Friday. A normal level of cyclosporin is around 250. This morning, before he took his oral dose, it was 425 (they didn't get that number back until way after he took the oral dose). They retested, thinking the blood was taken from the wrong line (the line that the put the cyclosporin in gets a coating of the medicine on it, so they have to take it from the other line). That test came back at 950!!! There is a level that causes concern for the liver and kidneys, but he hasn't gotten up to that just yet. I think that number is around 1200. It seems like he just isn't absorbing it like he should be. So, I don't think they will be sending us home. They haven't actually said one way or another. I don't know when they will.
He also has pretty much lost his voice. When he cries or tries to talk, just a little whisper comes out. They put a scope up his nose and into his throat to look at his vocal cords. The doctor said he has swollen vocal cords, probably caused by reflux. He never had reflux before, but she said it could have just started. So now we just have to make sure he stays sitting up after eating for awhile. He is already on protonics (like Zantac) to help, but he has been on that for several weeks now.
So....yeah....kind of bummed. We were so set on leaving tomorrow! Who knows, though, the doctors may let us leave and just have us come back every day in order to check on his cyclosporin levels. We will find out tomorrow!
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