We are still in the hospital. Cael threw up his medicine 3 times last night. That along with the wonky levels of cyclosporin are keeping him in here at least until tomorrow. They stopped the cyclosporin for a day and his level got too low, so they started again today with a slightly lower dose. They want to check that again tomorrow to make sure it is under control before letting him leave.
I think they also want him to not be throwing up his meds. He did okay this morning, not throwing anything up, but tonight he threw up once. He gets so many oral meds! He has 4 that are every 12 hours, 2 that are every 8 hours, 1 that is 4 times a day, and 1 that is every morning. So every morning there are 8 meds for him to take! They are all liquid and are given by a syringe. We tried adding some cherry flavoring tonight. I don't know if it helped or not. Some of the meds are absolutely disgusting (I've tasted most of them, just so I know) and some are ok. I'm half tempted to mix all the meds together, add some water to thin it out, add some flavoring and give it to him in a bottle. I'm just concerned he won't like the taste, and he won't drink it all. Then we will have wasted all of the meds.
So with the timing of the meds, we have to get up at midnight to give the 8 hour meds. Tonight, though, we also have to get up at 2:00 AM to give another med that is off on the timing. Once we leave here, we will be able to get the timing back to how we want it. He also gets some inhaled medicine morning and evening. Right now, of course, those aren't coinciding with his sleeping schedule, so when we leave here, we will have to fix that as well!
We are learning, though. We are figuring out our own little tricks that seems to help, like spreading out the meds so there is 15-20 minutes between each one, so if he does throw up, we only have to re-dose one medication, instead of them all.
I'm not sure if we will get to leave tomorrow. The doctors are very vague about all of it. They aren't in a rush to send him out of here. They will just keep pushing it one more day every day they don't like how things are going.
It must be so frustrating, not knowing when you are leaving the hospital; especially with it being so close. And the doctors don't know for sure, so all they can do is give you vague answers. But think, Cael is being kept in the hospital until the doctors are 100% comfortable with him going home. They are interested in his care and well-being. That's a good thing. Stay strong and be patient, it will all work out; it always does. <3
ReplyDeleteHave they tried giving him an anti-nausea medication that he can take when he takes the most meds a couple times a day? I know it would suck to add yet ANOTHER med, but this may help for now. (We do this with a lot of people in the hospital who's meds make them nauseated or make them vomit.)
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