Doing good today

Cael's picc line started working again after they did the alte plase thing. However, he is going to be getting a new line tomorrow. I think it is going to be a broviac catheter, which is placed in the chest. Apparently it is better for long term use, vs a regular picc line. The picc line he has is out from where it was originally placed, by 1.5 cm. The vascular access team said they wouldn't even consider it a central line any more. He is being put on the surgery list as a work in, so he has to stop eating at 5:30 am, in case he can be worked in first thing. However, I'm not sure what we do for eating if he can't get worked in until later in the day.

His calcium levels have stayed steady, so nothing is going to be done right now. The ionized calcium level is a smidge high, but the overall is within normal limits. As long as it doesn't increase again, nothing is going to be done. He is going to be switching formula to a special type with no calcium in it. Otherwise, no more shots or extra fluids.

He has had very good days lately. He is eating great, very energetic, and so happy. It's great to see him this way.

The transplant doctor came to talk to us. He said he wondered if Cael would benefit for m a little longer before transplant to let his lungs heal a little more. They want to do a CT next week to see if the lungs have gotten any worse. If not, he will go on to transplant. They keep doing that - do a c
CT, then wait 2 weeks to see if it is any better. We are so frustrated with the process. Hopefully this will be the last one, and he can start conditioning. It certainly won't be starting on Monday, as the last doctor was hoping.

We are set to be transferred to another floor,but still not back to bone marrow transplant. They want him on the 9th floor, which is the hematology and oncology floor because there are residents available at all hours, in case something is needed. They are still concerned about his high heart rate, and don't want him back at BMT just yet. This is another thing that is very frustrating. We don't want to be moved so many times. Each time it is a whole new set of nurses and doctors to deal with, meaning more people who don't know Cael and don't know his case. We just want him to be on the BMT floor, where he will be for several more weeks. The transfer may happen as soon as tomorrow. The doctors said they would talk with the transplant doctors about where to send him. I'm still hoping they decide on the BMT unit. Probably not, but I will hold on to the hope a little longer.