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Wednesday, October 31, 2012

Hair Loss and ANOTHER new room



Happy Halloween! I hope everyone had a lovely evening with their kiddos taking them trick or treating. They didn't do anything special here for Halloween. A few nurses dressed up, but nothing else. Cael was Tarzan! He even had a little "Cheetah" monkey to hold on to. Here he is from this morning. We couldn't leave the costume on all day since he kept getting the black fur in his mouth, but he had it on long enough for the doctors to see him and a few nurses. Everyone thought he was just the cutest Tarzan they had seen. :)

I feel like I did something so mean to Cael today. I lint rolled his head...literally took a lint roller and rolled it over his head several times to get off as much loose hair as possible. Yesterday, Adam ran his fingers through his hair and pulled out a few strands. Today, we woke up to a pillowcase full of his hair, and his gown covered in hair. He has lost probably 1/2 or more of his hair in just one day. I'll post another pic tomorrow, but the pics above in his costume are from just this afternoon. He lost his hair so quickly! I know he will still be cute without hair, and that it will all grow back, but it is so sad to see him losing it all.

We had to change rooms again today due to a broken water pipe in the other room. Late last night I noticed a lot of water in one of the cabinets by the sink, so they checked it and determined a pipe was leaking. Sigh...so we moved rooms. Again. This really better be the last move. I'm so tired of moving all our stuff. We have moved everything 5 times now, so we really don't want to do it again!

Cael is being a bedtime warrior tonight! He fell asleep in his Great Aunt Pam's arms around 8:00, but was woken up to change his dressing on his central line. He hasn't fallen back asleep and doesn't seem to have any intention of sleeping soon. He has never stayed up this late before! His breathing treatment starts now, so maybe the white noise of the fan will lull him to sleep.

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