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Tuesday, October 30, 2012

Rolling, Clapping, Platelet Transfusion, and Hair Loss

Cael did lots of things today that he doesn't usually do. When the physical therapist came by, he rolled several times for her, which he would never do before. He has been able to for a long time, but just hasn't done it when we try to get him to. He also was trying so hard to get his knees under him. He usually just wants to stick his legs out to the sides and behind him like a little froggie, but today he actually seemed to be trying to get up into the crawling position.

He also has been clapping so much it seems he is applauding himself. So every time he claps, we clap with him and say "Yay Cael!" He just started clapping a few days ago, so we are pretty excited about it. During PT, when the therapist tried to get him to roll, he would just smile and clap, which seemed like he was trying to distract us from what we wanted him to do. lol

Tomorrow is Halloween! Cael has a cute costume, compliments of Adam's aunt Pam. I won't spoil the surprise. You will have to come back tomorrow to see a picture of his costume! He is so cute though. I guess all the nurses will dress up, too, which I bet all the kids really like. It's nice for them to get a little change around here.

Cael's platelets have gotten very low, so he is getting a platelet transfusion today. They were going to wait until tomorrow, and give him his IVIG today, but when he threw up this evening, his nose started to bleed and wouldn't stop. It probably bled for 30-40 minutes, just a little at a time. Platelets are needed to help blood clot, and since he is low, the blood just kept coming. So they decided to switch and do the platelet transfusion tonight and the IVIG tomorrow instead.

Now for the really sad news. It seems that Cael is starting to lose his hair. Adam said that every time he kisses Cael's head, a few strands come out. So he ran his fingers through it again, and sure enough, a few strands came out. One nurse said they usually end up shaving the kids heads when they start losing a lot of hair. Of course we were both hoping it wouldn't happen, but I'm not completely surprised. I don't know if we will shave his head. If it ends up really patchy, we might think about it, or if he is losing a lot so it is all over the place.

I guess some kids keep their eye lashes. Maybe he will be lucky and keep those. Everyone just LOVES his lashes. I'm sure he will still be the cutest baby around, even without his hair. :)

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