Today, Cael is 10 months old! We have been here at Texas Children's Hospital for 2 months now, and almost 3 months of total hospital time at this point.
He started his chemotherapy this morning at 8:00. It has been a busy, busy day so far. Here is what has happened so far (and it is only 3:30 PM)
7:30 wake up
7:45 bottle of formula
8:00 oral dose of adavant (anti nausea)
8:00 IV ciproflaxacin (preventative antibiotic)
8:00 IV busulfan (chemotherapy)
8:15 physical therapist came by to play
10:00 finish IV busulfan and ciproflaxacin, start IV fluids
start IV fluids
draw blood (every 30 minutes until 2:00)
10:15 IV protonics (to soothe his tummy)
1:00 occupational therapist came by to work with him (pretty much the same as the physical therapist)
2:00 start busulfan (will end at 4:00)
3:00 zofran (anti nausea)
He is doing great. The busulfan chemo isn't supposed to be too bad. And once he gets the cytoxan, it will still take a week or so for the side effects to really be seen.
We got a special mouth wash that we will be using several times a day to make sure his mouth is nice and clean. We don't want any bacteria growing in there while he has no immune system to get rid of it. We also have special soap to wash him with. They are very careful now that he has started the chemo to make sure he is clean and not getting any sort of infections.
Looks like he is awake from his nap, so I better go entertain him for awhile. :)
Why are they drawing blood every 30 minutes?
ReplyDeleteI think they are just checking all of his levels to make sure he doesn't have an adverse reaction to the chemo, including his liver enzymes, since liver problems is one rare side effect
ReplyDeleteBless his precious lil soul and body!!!
ReplyDeleteThis story has touched my heart. Such a beautiful little boy. He looks so strong and happy. Truly an amazing family behind him. get well soon Cael. Love from Jamie-lee & Alun, All the way from Wales in the UK. xxx
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