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Wednesday, October 24, 2012

Not a Good Day

Cael ate absolutely nothing today. We tried several times, but he wouldn't take a single sip. He ended up sleeping a lot today, too, probably because he hasn't eaten in over 24 hours. I thought that when he finally stopped eating, I would be able to deal with it easier, knowing that the reason was the chemo. However, it still is so hard to see him not eating. He also has a rash on his chest from the dressing over his central line. I think it is causing him quite a bit of discomfort. He scratches at it and cries when we touch it. The doctors think it might be a fungal infection from sweating under the dressing. So we have to be careful that he doesn't scratch it then touch somewhere else, which upsets him when we pull his hands away from that area too. Poor guy isn't having a good time right now.

We have changed rooms...again. There is a patient coming in that has a very infectious illness that they don't want anyone to catch, so they need him in the negative pressure room. So we loaded up all our junk and moved it to another room for the 4th time! We have accumulated so much stuff, it is such a pain to move everything. Each time we move, we try to purge a little bit, but we still have so much more than when we first got here. Hopefully they don't make us move any more times. On the plus side, this room has really good water pressure in the shower. (It's the little things :) )

3 comments:

  1. hang in there love fingers and everything crossed and it will be all worth it in the end. thinking of you and your family, Katrina from australia.

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  2. So sorry to hear he's not eating. Is his mouth sore/red? Chemo will cause that and as a result cause the person (Cael) to not want to eat. Have faith that this is "normal" and he will soldier through this. Just keep giving him every bit of love you can. :)

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  3. Even if there's a reason for it, it's so hard seeing your kid not eat. :(

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